Silent Cries and Hidden Tears: NINDS Periventricular Leukomalacia Information

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Consider helping a child with your donation?

By donating to a child, you will help to pay for that child's medical care, surgery, medication, doctor's visit, or medical equipment, school supplies, clothing, food and toys for their development?

All the children in listed here live within the United States. The families of these children have extra challenges in providing care for a variety of reasons such as unemployment, loss of medical insurance, life changing illness, life challenge or disability, extensive medical bills, or adoption.

Caring for five special children, we understand these daily challenges.

One time donations are acceptable through the donation button on our blog to the right at the top of our posts.

Every dollar goes to support both the child and administrative costs to continue our program.

One time donations in any amount are accepted ($5.00, $10.00, $20.00, $50.00, $100.00, $250.00, $500.00).

Weekly Donations are $10.00 !

Monthly Donations are $20.00 !

Donating is easy! We have various children right here in the United States who need your help. To donate to a child:
1. Click on the Donation button to the right at the top.
2. Choose how much you want to donate.
3. Write the child's name on the donation in comments.
4. Or Click on that Child's Donation button.
5. Your account will automatically be billed.
6. Subscribe to our blog for updates on how your child is doing.
7. Come back and donate when you want.
8. If you want to donate for a specific item, please write the child's name and the item in comments when you make the donation.

If you know of a child you recommend for sponsorship, please email us at academyofthepossible@gmail.com for more information. Be sure to include your email or mailing address, so we can send you the information.

Take a look at the children below. Each child has unique needs. Each child's needs will be updated as they change!

Michael: Michael is a charming young man who was adopted from Kazakhstan and suffered malnutrition in his early life due to the limited resources of the orphanage who did their best to care for him. Michael has multiple disabilities including Ectodermal Dysplasia, Chromose 16 deletion, Dysphagia, Cerebral Palsy, Juvenile Osteoporosis, Juvenile Rheumatoid Arthritis, Auditory Processing Disorder, Short Stature, Growth Hormone Deficiency, Cognitive and Developmental Delays, Speech and Language Delays, Thrombocytopenia, Hemolytic Anemia, Evan's Syndrome, Systemic Lupus, Hashimoto's Thyroiditis, Kidney Disease, Seizures, Autism, Periventricular Leukomalacia, Hypoplasia of the Corpus Callosum, Heart Murmur, Asthma, GERD, Gastrointestinal Disorder, medication, and on-going follow up, physical therapy, occupational therapy, medical equipment such as wheelchair, AFO braces, walker, cooling vest. Michael cannot play contact sports, so access to swimming for low impact exercise is ideal. A wheelchair accessible van would also help greatly.

Michael's Needs: Michael needs a phase cooling hat to help him keep cooler during the summer months and warmer weather, and his house needs new concrete for handicap accessible entrance to his home. Michael would also like a saltwater pool so he can swim at home in the evening when he won't be affected by the sun or heat or chlorine which can all cause him seizures. A new helmet for seizures. This will allow Michael to go outside more often. Michael would like a laptop and software to help him with his schoolwork, particularly Rosetta Stone Latin for High School, Teaching Textbooks Math, and All the Apologia Science on CD.

Michael's Dreams: Michael dreams of owning a guitar and becoming a medical doctor to help other kids like himself.

Gabriela: Gabriela is a sensitive young lady who was adopted from the Ukraine, given up for adoption again by her first family and then adopted by her forever family. Gabriela has Bipolar Disorder, Headaches, Frequent Episodes of Blindness, Muscle Twitches, Difficulty with Numbness, Tingling and Walking, Heartburn, Swallowing, Breathing, and also has ADHD, medication, on-going follow up. Gabriela is currently being evaluated for Multiple Sclerosis.

Gabriela's Needs: Gabriela needs regular donations to help pay for her physician follow up which insurance does not pay for. Gabriela also needs AFO braces to help her walk better.

Gabriela's Dreams: Gabriela dreams of rescuing animals and become a Veterinarian. Gabriela would really like some new art supplies and a new DS with all the pet games.

Joseph: Joseph was adopted from Estonia by his first family who was unable to care for him due to extenuating circumstances and then adopted by his forever family. Joseph is a charming young man who loves attention and has Severe Global Delays, FAS (Fetal Alcohol Syndrome), Pulmonary Hypertension, Transposition of the Major Vessels Repaired, several open heart surgeries to repair his declining heart over the next few years and a possible pacemaker, Cognitive Delays, Speech and Language Delays, Developmental Delays, Learning Disability, Microcephaly, Craniostenosis, Short Stature, Growth Hormone Deficiency, GERD, medication, and on-going follow up.

Joseph's Needs: Joseph is slow to grow and wears out his clothes and needs new shoes. An ipad that can help him develop more fully academically.

Joseph's Dreams: Joseph loves cars and dreams of working with the police when he grows up.

Joshua: Joshua also was adopted from Estonia and given up by his first family and later adopted by his forever family. Joshua is a quiet young man with Probable Fetal Alcohol Effects, Rough Beginnings, and Development and Learning Delays.

Joshua's Dreams: Joshua dreams of building rockets, piloting a plane and becoming an engineer.

Shawna: Shawna is a lovely girl adopted in the US who is healthy but lives with several siblings with special needs.

Shawna's Needs: Shawna needs new clothes, and shoes.

Shawna's Dreams: Shawna dreams of having her own horse to name Flicka, a pool to swim in, having new princess shoes and a princess dress, and lots of fruit trees to eat from in her backyard.

THANK YOU FOR YOUR KINDNESS, LOVE AND GENEROSITY!

Gifting

Towards a child in need, towards an adoption, and a child's dream of having a family. Money raised will help pay expenses such medical care and clothes. Please support our mission to help children around the world.

Thousands of children are dying daily from starvation and lack what we take for granted (the basics such as electricity, running water, heat, and education). Hundreds of thousands of children live in orphanages. Children are institutionalized because of special needs. Adoption is our mission field.

For many children, the simple desire is to be wanted and have a family of their own and to be loved.

Please consider a gift of $5.00, $10.00, or $20.00 and change the course of a child's life forever. Using the Donation button near the bottom of the blog posts is easy.

Small amounts are very welcome. Please consider even just $1.00. - which will go a long way to help a child.

Favorite Quotes

"We Are Called To Be Adopted: He predestined us to be adopted as his sons through Jesus Christ, in accordance with his pleasure and will." Ephesians 1:5
"Adoption has a way of emptying our pockets."
"My goal and prayer in life is to be half as loving as Mother Theresa." Jennifer Richardson
"Adoption is one of the best ways to lose that man-pleasing desire we carry that want(s) others to approve of us and what we do." Jenny
"Sometimes I think it is not God saying no to us, but us giving up too soon when the fight got tough." Jennifer Richardson
I will not leave you as orphans; I will come to you. John 14:18
Delight yourself in the LORD and He will give you the desires of your heart. Commit your way to the LORD; trust in Him and He will do this: He will make your righteousness shine like the dawn, the justice of your cause like the noonday sun. Psalm 37:4-6 (NIV)
God give us all the spirit of wisdom and revelation. Ephesians 1:14
May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit. Romans 15:13
For the vision is yet for the appointed time; it hastens toward the goal, and it will not fail. Though it tarries, wait for it; for it will certainly come, it will not delay. Habakkuk 2:3
"We can make a difference - one child at a time." Jennifer Richardson

Prayers & Praises

PRAYER REQUESTS:

Safety and health for our little ones in Africa. - Ongoing
For The Lord's leading and ears to hear. - Ongoing
For The Letting Go God Asks of Us, - Ongoing.
Money and financial provision for the adoption. - Ongoing
For the homeless and hungry people of Africa. - Ongoing.
For those dying of starvation and malnutrition in Africa each moment. - Ongoing.
For the Lord to bless abundantly John and Laurie in their ministry. - Ongoing
For Mary to experience God's presence in every day, - Ongoing.
For all marriages and relationships everywhere, that God would be the center of the relationship, - Ongoing.
For everyone who suffers from Diabetes and Chronic conditions of any kind, that God would heal their bodies and bring them comfort, - Ongoing.
For everyone who suffers from any mental illness or psychiatric condition, depression, Bipolar Disorder, and ADHD, that the Lord would calm their minds and their souls and bring order, - Ongoing.
For the Chan's and the health of their children born and unborn, - Ongoing.
For the Szolomayer Family that the Lord may give them joy and for all their personal intentions - Ongoing.
For all families everywhere for peace and blessings during the Christmas season, that we may all grow closer to God's heart, - Ongoing.
For our family and God's protection, - Ongoing.
For our relatives to receive God's heart and truth, - Ongoing.
For the Lee Family that the Lord may give them joy and for all their personal intentions - Ongoing.
For all of our children for health, growth and peace, - Ongoing.
For Face to Face Ministries and God's leading and blessing, - Ongoing.

PRAISE REPORTS:

For Face to Face Ministries and all the staff who seek the Lord 12-2007
For our friends R and T who hope to finalize the adoption of this beautiful little boy. 12-2007
For my sister who traveled safely during the holidays.
For Scott who received healing from a cold. 11-2007
For Jennifer who received healing from her asthma 11-2007
For our Saturn which got a new tire 11-2007
For Shawna who received healing from her first cold at 20 months 11-02-07.
For Michael who got his cast off 11-13-07
Everyone got over their winter colds 11-14-07

Saturday, June 14, 2008

NINDS Periventricular Leukomalacia Information

What is Periventricular Leukomalacia?

Periventricular leukomalacia (PVL) is characterized by the death of the white matter of the brain due to softening of the brain tissue. It can affect fetuses or newborns; premature babies are at the greatest risk of the disorder. PVL is caused by a lack of oxygen or blood flow to the periventricular area of the brain, which results in the death or loss of brain tissue. The periventricular area-the area around the spaces in the brain called ventricles-contains nerve fibers that carry messages from the brain to the body's muscles. Although babies with PVL generally have no outward signs or symptoms of the disorder, they are at risk for motor disorders, delayed mental development, coordination problems, and vision and hearing impairments. PVL may be accompanied by a hemorrhage or bleeding in the periventricular-intraventricular area (the area around and inside the ventricles), and can lead to cerebral palsy. The disorder is diagnosed by ultrasound of the head.

Is there any treatment?
There is no specific treatment for PVL. Treatment is symptomatic and supportive. Children with PVL should receive regular medical screenings to determine appropriate interventions.

What is the prognosis?
The prognosis for individuals with PVL depends upon the severity of the brain damage. Some children exhibit fairly mild symptoms, while others have significant deficits and disabilities.

What research is being done?
The NINDS supports and conducts research on brain injuries such as PVL. Much of this research is aimed at finding ways to prevent and treat these disorders.

Organizations
National Organization for Rare Disorders (NORD)P.O. Box 1968(55 Kenosia Avenue)Danbury, CT 06813-1968orphan@rarediseases.org http://www.rarediseases.org/Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)Fax: 203-798-2291

Related NINDS Publications and Information
NINDS Cerebral Palsy Information PageCerebral palsy information page compiled by the National Institute of Neurological Disorders and Stroke (NINDS).

Cerebral Palsy: Hope Through Research
Cerebral palsy information booklet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Publicaciones en Español

La Parálisis Cerebral: Esperanza en la Investigación
Prepared by:Office of Communications and Public LiaisonNational Institute of Neurological Disorders and StrokeNational Institutes of HealthBethesda, MD 20892

NINDS health-related material is provided for information purposes only and does not necessarily represent endorsement by or an official position of the National Institute of Neurological Disorders and Stroke or any other Federal agency. Advice on the treatment or care of an individual patient should be obtained through consultation with a physician who has examined that patient or is familiar with that patient's medical history.

All NINDS-prepared information is in the public domain and may be freely copied. Credit to the NINDS or the NIH is appreciated.

Last updated February 07, 2008

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Facts on Africa

Africa is the second largest continent in the world made up of 53 independent countries. There is a great diversity in cultures and people. Africa is almost entirely surrounded by water and the land ranges from deserts to rain forests and mountains to grassland. National Geographic has a wonderful amount of information on their webpage about Africa. At the same time, at least 15 countries in Africa are the least developed in the world struggling with famine, disease, HIV and AIDs in some countries, extreme poverty, and lack of education. Maryknoll states that "70% of its population survives on less than $2 a day." I certainly could not live off of that.

BASIC FACTS
Continental Area - 11,700,000 square miles
Estimated Population - 690 million people
Largest City - Cairo, Egypt, 9.2 million people
Largest Country - Sudan, 968,000 square miles
Longest River - Nile, 4,160 miles
Largest Lake - Victoria, 26,828 square miles
Tallest Mountain - Kilimanjaro, Tanzania, 19,340 feet

MALARIA
According to the CDC, "In areas of Africa ..., an estimated 990,000 people died of malaria in 1995 – over 2700 deaths per day, or 2 deaths per minute."

AIDS EPIDEMIC
According to standwithafrica.org, "Africa is home to nearly 70% of adults and 80% of children living with HIV in the world, and has buried three-quarters of the more than 20 million worldwide who have died of AIDS since the epidemic began."

CHILD MARRIAGES - often driven by poverty:
According to the CDC, "In 2002, ≈52 million girls less than 18 years of age were married. With ≈25,000 girls less than 18 years being married each day, an estimated 100 million will be married by 2012... Child marriages occur 42% for Africa..."

THE MOST VULNERABLE
According to stand with africa, "In eastern Africa, Ethiopia, Kenya, and Somalia continue to suffer from prolonged periods of drought. The pastoral regions of these countries are the most vulnerable, and almost 2 million people in the Horn of Africa received emergency rations from World Food Program in 2001."

THE WORST DROUGHT
According to save the children, "Save the Children and other humanitarian organizations are calling the worst drought Africa has seen since 1984."

SUFFERING AFRICA
According to CNN, "Ethiopia ...Drought, AIDS and preventable disease have put millions of Africans at risk of starvation. People in southern Africa and the Horn of Africa stand to suffer most, officials say. "

RISK OF STARVATION
According to the UN, "World Food Program (WFP) said in December that more than 38 million people across Africa are at risk of starvation."

FOOD SHORTAGES
According to CNN, "Hardest hit are the Horn of Africa, where about 17.9 million people face severe food shortages, and southern Africa, where 16.41 million are at risk"

FOOD CRISIS
According to the UN, "In Ethiopia, ...expects to provide food aid to 11.3 million people in 2003, but that number could rise to 14.3 million people by year's end. "

A CONTINENT OF HUNGRY PEOPLE
According to Fr. Richard Roy, director of the Missionaries of Africa's Washington, DC, office, www.missionariesofafrica.org, "An entire continent of people are in dire need of food, clean water and affordable medicine. "

MASS STARVATION
James Morris, the Executive Director of the UN World Food Program used the words "mass starvation in Africa" and the UN referred to "Africa's critical situation".

CHILDREN STARVING TO DEATH
According to the BBC, "Children are dying daily in the few feeding centres there are, where their place in the queue could make the difference between life and death. " The BBC also said "Children are dying of starvation in feeding centres in Niger, where 3.6m people face severe food shortages"

TOGETHER WE CAN MAKE A DIFFERENCE. WE CAN DO SOMETHING. DONATE AND HELP US HELP THREE CHILDREN WHO NEED US.

Liberian Statistics

Liberia: means “land of the free”
Founded By: free African Americans and freed slaves from the USA in 1820
Civil War: 1989 to 2003, a total of 14 years
Below Poverty: more than 80%
Life Expectancy in the Total Population: only 39.65 years
Literacy in the Total Population: only 57.5%, and in the female population only 41.6%
Labor Population: is 70% agriculture
Unemployment: 85%
Population: > 3 million
Population Growth: 4.91%
Ethnics Groups Indigenous African tribes: 95% including Kpelle, Bassa, Gio, Kru, Grebo, Mano, Krahn, Gola, Gbandi, Loma, Kissi, Vai, Dei, Bella, Mandingo, and Mende
Ethnic Groups Americo-Liberians: 2.5% (descendants of immigrants from the US who had been slaves
Ethnic Groups Congo People: 2.5% (descendants of immigrants from the Caribbean who had been slaves)
Religious Beliefs: indigenous beliefs 40%, Christian 40%, Muslim 20%
Fertility Rate: 6.02 children per woman
Location: Western Africa, bordres the North Atlantic Ocean, between Cote d’lvoire and Sierra Leone
Total Square Miles Area: 111,370
Climate: tropical, hot, humid, dry winters with hot days and cool to cold nights; wet cloudy summers with frequent heavy showers.
Terrain: Mostly flat to rolling coastal plains rising to rolling plateau and low mountains in northeast
President: Ellen Johnson Sirleaf
Flag: Red and White striped with one white star on a blue background in the upper left corner (similar in style to the US flag)
Capital: Monrovia
United Nations: Member of
Currency: Primarily the Liberian Dollar (LD), also accepts US dollars
Major Languages: English, Ethnic group languages

Sources: Courtesy of the CIA World Factbook 2006 and the US Department of State Country Background Notes of 05-2007, and globaledge.msu.edu

Silent Cries and Hidden Tears

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NINDS Periventricular Leukomalacia Information

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I Will Be With You Wherever You Go

Parent Support - Join - Academy of the Possible

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An Inspiration and Hope To All

Adoption and Other Links

Facts on Africa

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In the last month of our Liberian adoption, we have received...

Silent Cries and Hidden Tears

"Defend the cause of the weak and fatherless; maintain the rights of the poor and oppressed."

Subscribe To

Please Donate and Help A Child

Our Business

Our Webpage

Shop Online Richardson Studios

Visit Our Store ! Support Special Needs Kids

If there were a Catholic school for all special needs children from preschool to 12th with onsite services for various needs such as occupational or physical therapy, speech and language, psychology etc, would you or someone you know enroll a child?

Gifting

Our Growing Family

We Adopted Five Kids !

Favorite Songs

Favorite Quotes

Prayers & Praises

Anah

Blog Archive

Site Counter

Email and Mailing List

Donations and Gifting

Saturday, June 14, 2008

NINDS Periventricular Leukomalacia Information

No comments:

I Will Be With You Wherever You Go

Parent Support - Join - Academy of the Possible

Followers

Spiritual Resources

Subscribe To

Shop.RichardsonStudios.com

An Inspiration and Hope To All

Adoption and Other Links

Facts on Africa

Liberian Statistics

Liberian English

In the last month of our Liberian adoption, we have received...