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Sunday, March 11, 2012
Mitochondrial Disease / Organizations and Research
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PVL
PVL
PERIVENTRICULAR LEUKOMALACIA
Also known as PVL.
Table of Contents
What is Periventricular Leukomalacia?
Is there any treatment?
What is the prognosis?
What research is being done?
What is Periventricular Leukomalacia?
Periventricular leukomalacia (PVL) is characterized by the death of the white matter of the brain due to softening of the brain tissue. It can affect fetuses or newborns; premature babies are at the greatest risk of the disorder. PVL is caused by a lack of oxygen or blood flow to the periventricular area of the brain, which results in the death or loss of brain tissue. The periventricular area-the area around the spaces in the brain called ventricles-contains nerve fibers that carry messages from the brain to the body's muscles. Although babies with PVL generally have no outward signs or symptoms of the disorder, they are at risk for motor disorders, delayed mental development, coordination problems, and vision and hearing impairments. PVL may be accompanied by a hemorrhage or bleeding in the periventricular-intraventricular area (the area around and inside the ventricles), and can lead to cerebral palsy. The disorder is diagnosed by ultrasound of the head.
Is there any treatment?Also known as PVL.
Table of Contents
What is Periventricular Leukomalacia?
Is there any treatment?
What is the prognosis?
What research is being done?
What is Periventricular Leukomalacia?
Periventricular leukomalacia (PVL) is characterized by the death of the white matter of the brain due to softening of the brain tissue. It can affect fetuses or newborns; premature babies are at the greatest risk of the disorder. PVL is caused by a lack of oxygen or blood flow to the periventricular area of the brain, which results in the death or loss of brain tissue. The periventricular area-the area around the spaces in the brain called ventricles-contains nerve fibers that carry messages from the brain to the body's muscles. Although babies with PVL generally have no outward signs or symptoms of the disorder, they are at risk for motor disorders, delayed mental development, coordination problems, and vision and hearing impairments. PVL may be accompanied by a hemorrhage or bleeding in the periventricular-intraventricular area (the area around and inside the ventricles), and can lead to cerebral palsy. The disorder is diagnosed by ultrasound of the head.
There is no specific treatment for PVL. Treatment is symptomatic and supportive. Children with PVL should receive regular medical screenings to determine appropriate interventions.
What is the prognosis?
The prognosis for individuals with PVL depends upon the severity of the brain damage. Some children exhibit fairly mild symptoms, while others have significant deficits and disabilities.
What research is being done?
The NINDS supports and conducts research on brain injuries such as PVL. Much of this research is aimed at finding ways to prevent and treat these disorders.
Organizations
| National Organization for Rare Disorders (NORD) P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT 06813-1968 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291 |
Related NINDS Publications and Information which can be found at NINDS:
Prepared by:- NINDS Cerebral Palsy Information Page
Cerebral palsy information page compiled by the National Institute of Neurological Disorders and Stroke (NINDS). - Cerebral Palsy: Hope Through ResearchCerebral palsy information booklet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
Office of Communications and Public Liaison
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892
All NINDS-prepared information is in the public domain and may be freely copied.
Credit to the NINDS or the NIH is appreciated.
Information provided courtesy of NHANES.
NINDS: National Institute of Neurological Disorders and Stroke
NINDS is part of the National Institutes of Health
Microcephaly
Microcephaly
Microcephaly
What is Microcephaly?
Microcephaly is a medical condition in which the circumference of the head is smaller than normal because the brain has not developed properly or has stopped growing. Microcephaly can be present at birth or it may develop in the first few years of life. It is most often caused by genetic abnormalities that interfere with the growth of the cerebral cortex during the early months of fetal development. It is associated with Down’s syndrome, chromosomal syndromes, and neurometabolic syndromes. Babies may also be born with microcephaly if, during pregnancy, their mother abused drugs or alcohol, became infected with a cytomegalovirus, rubella (German measles), or varicella (chicken pox) virus, was exposed to certain toxic chemicals, or had untreated phenylketonuria (PKU). Babies born with microcephaly will have a smaller than normal head that will fail to grow as they progress through infancy. Depending on the severity of the accompanying syndrome, children with microcephaly may have mental retardation, delayed motor functions and speech, facial distortions, dwarfism or short stature, hyperactivity, seizures, difficulties with coordination and balance, and other brain or neurological abnormalities. Some children with microcephaly will have normal intelligence and a head that will grow bigger, but they will track below the normal growth curves for head circumference.
Is there any treatment?
There is no treatment for microcephaly that can return a child’s head to a normal size or shape. Treatment focuses on ways to decrease the impact of the associated deformities and neurological disabilities. Children with microcephaly and developmental delays are usually evaluated by a pediatric neurologist and followed by a medical management team. Early childhood intervention programs that involve physical, speech, and occupational therapists help to maximize abilities and minimize dysfunction. Medications are often used to control seizures, hyperactivity, and neuromuscular symptoms. Genetic counseling may help families understand the risk for microcephaly in subsequent pregnancies
What is the prognosis?
Some children will only have mild disability. Others, especially if they are otherwise growing and developing normally, will have normal intelligence and continue to develop and meet regular age-appropriate milestones.
What research is being done?
The National Institute of Neurological Disorders and Stroke (NINDS) conducts research relating to microcephaly in its laboratories at the National Institutes of Health (NIH) and supports additional research through grants to major medical institutions across the country. A small group of researchers studying a rare neurometabolic syndrome (3-PGDH), which causes microcephaly, have successfully used amino acid replacement therapy to reduce and prevent seizures.
Select this link to view a list of studies currently seeking patients.
Organizations
The Arc of the United States
1010 Wayne Avenue
Suite 650
Silver Spring, MD 20910Info@thearc.orghttp://www.thearc.org
Tel: 301-565-3842
Fax: 301-565-3843 or -5342
Birth Defect Research for Children, Inc.
800 Celebration Avenue
Suite 225
Celebration, FL 34747
betty@birthdefects.org
http://www.birthdefects.org
Tel: 407-566-8304Fax: 407-566-8341
March of Dimes Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
askus@marchofdimes.com
http://www.marchofdimes.com
Tel: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203
National Dissemination Center for Children with Disabilities
U.S. Dept. of Education
Office of Special Education Programs
P.O. Box 1492
Washington, DC 20013-1492
nichcy@aed.org
http://www.nichcy.org
Tel: 800-695-0285
Fax: 202-884-8441
Prepared by:
Office of Communications and Public Liaison
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892
All NINDS-prepared information is in the public domain and may be freely copied. Credit to the NINDS or the NIH is appreciated. Last updated February 13, 2007
National Institute of Neurological Disorders and Stroke
Information provided courtesy of NHANES on Microcephaly.
NINDS: National Institute of Neurological Disorders and Stroke
NINDS is part of the National Institutes of Health
Mother Teresa Quote
" There is no such thing as doing Great Things in this World.
We can only do small things with Great Love." Mother Teresa
Poem: Silent Cries and Hidden Tears
Poem: Silent Cries and Hidden Tears
Tonight a child cries
But no tears come
They cry
Of a heartfelt pain
In deep longing
And of physical pain
Pain from
Lack of food
Lack of love
Lack of shelter
Lack of medicine
Lack of education
These are the
Silent Cries
Cries of a child who
Needs food to nourish them
Needs a home to shelter and cherish them
Needs to feel loved unconditionally
Needs opportunities to grow, heal and learn
But most of all
Needs parents to belong to
And a mom and dad to love them.
These are the Hidden Tears
Tears of a child who
Wants to belong and to be wanted by someone.
These are the Silent Cries and Hidden Tears
Of a Child waiting
Waiting for you to make a difference.
Everytime you donate, you save a life and make a difference forever.
Written by Jennifer Richardson
But no tears come
They cry
Of a heartfelt pain
In deep longing
And of physical pain
Pain from
Lack of food
Lack of love
Lack of shelter
Lack of medicine
Lack of education
These are the
Silent Cries
Cries of a child who
Needs food to nourish them
Needs a home to shelter and cherish them
Needs to feel loved unconditionally
Needs opportunities to grow, heal and learn
But most of all
Needs parents to belong to
And a mom and dad to love them.
These are the Hidden Tears
Tears of a child who
Wants to belong and to be wanted by someone.
These are the Silent Cries and Hidden Tears
Of a Child waiting
Waiting for you to make a difference.
Everytime you donate, you save a life and make a difference forever.
Written by Jennifer Richardson
Copyright 2008 to 2012 Jennifer Richardson
Resources and Support / Poem Adoption is a Gift
Resources and Support
" There is no such thing as doing Great Things in this World. We can only do small things with Great Love." Mother Teresa
Our expanding Resources pages are here to provide you with information on the illness, diability, diagnosis, and challenges your child faces. If there is information you would like to see here and don't, please contact us. We will be happy to research it for you and provide information and resources to help you and your child on their journey.
He shall direct your paths !
Our expanding Resources pages are here to provide you with information on the illness, diability, diagnosis, and challenges your child faces. If there is information you would like to see here and don't, please contact us. We will be happy to research it for you and provide information and resources to help you and your child on their journey.
He shall direct your paths !
Trust in the Lord with all your heart, and lean not on your own understanding. In all your ways acknowledge Him, and He shall direct your paths. Do not be wise in your own eyes. Proverbs 3: 5-7
Thank you Lord for being Savior of Our Lives, your unending mercy and love, and for directing our paths.
Jennifer Richardson
Please check out our blog www.richardsonstudios.blogspot.com
In the World, But not Of the World.
Every child has a story, and every child matters !
Poem: Adoption Is A Gift
Adoption is a gift
Of life
Of love
Of faith
Of hope
Of trust,
Of prayer,
And
In the end,
The gift is
Life in the flesh
Love given
Faith received
Hope carried
Trust had
Prayers Answered
in the form of a child.
Written By: Jennifer Richardson
Of life
Of love
Of faith
Of hope
Of trust,
Of prayer,
And
In the end,
The gift is
Life in the flesh
Love given
Faith received
Hope carried
Trust had
Prayers Answered
in the form of a child.
Written By: Jennifer Richardson
For More Information on many different disabilities and illnesses, please see that individual page.
If you cannot find what you are looking for, or would like us to add information on a specific illness or disabilty, please let us know.
Visit our contact us page.
If you cannot find what you are looking for, or would like us to add information on a specific illness or disabilty, please let us know.
Visit our contact us page.
MORE TO COME !
Lupus
Lupus
The Face of Lupus:
Other Lupus Resources:
Lupus Foundation of America:
This is a great resource for further information on this disease, and can be found at:
http://www.lupus.org/newsite/index.html
Lupus International:
This organization has regular events to fund research and lupus and can be found at:
http://www.lupusinternational.com/events/race.aspx
Lupus Foundation of America:
This is a great resource for further information on this disease, and can be found at:
http://www.lupus.org/newsite/index.html
Lupus International:
This organization has regular events to fund research and lupus and can be found at:
http://www.lupusinternational.com/events/race.aspx
Lupus is a puzzle. You never know when or how it might hit you next. Michael has to be strong and fight Lupus everyday. Help us find a cure. Please donate generously. Together we can make a difference in the life of a child. Go to the donations page for further information on how you can get involved.
What are Neurological Sequelae Of Lupus?
Is there any treatment?
What is the prognosis?
What research is being done?
Clinical Trials
Organizations
Additional resources from MEDLINEplus
What are Neurological Sequelae Of Lupus?
Is there any treatment?
What is the prognosis?
What research is being done?
Clinical Trials
Organizations
Additional resources from MEDLINEplus
What are Neurological Sequelae Of Lupus?
Lupus (also called systemic lupus erythematosus) is a disorder of the immune system. Normally, the immune system protects the body against invading infections and cancers. In lupus, the immune system is over-active and produces increased amounts of abnormal antibodies that attack the body's tissues and organs. Lupus can affect many parts of the body, including the joints, skin, kidneys, lungs, heart, nervous system, and blood vessels. The signs and symptoms of lupus differ from person to person; the disease can range from mild to life threatening.
Initial symptoms of lupus may begin with a fever, vascular headaches, epilepsy, or psychoses. A striking feature of lupus is a butterfly shaped rash over the cheeks. In addition to headache, lupus can cause other neurological disorders, such as mild cognitive dysfunction, organic brain syndrome, peripheral neuropathies, sensory neuropathy, psychological problems (including personality changes, paranoia, mania, and schizophrenia), seizures, transverse myelitis, and paralysis and stroke.
Is there any treatment?
There is no cure for lupus. Treatment is symptomatic. With a combination of medication, rest, exercise, proper nutrition, and stress management, most individuals with lupus can often achieve remission or reduce their symptom levels. Medications used in the treatment of lupus may include aspirin and other nonsteroidal anti-inflammatory medications, antimalarials, corticosteroids, and immunosuppressive drugs.
What is the prognosis?
The prognosis for lupus varies widely depending on the organs involved and the intensity of the inflammatory reaction. The course of lupus is commonly chronic and relapsing, often with long periods of remission. Most individuals with lupus do not develop serious health problems and have a normal lifespan with periodic doctor visits and treatments with various drugs.
What research is being done?
Investigators researching lupus seek to increase scientific understanding of the disorder and to find ways to treat, prevent, and ultimately, cure it. Several components of the National Institutes of Health support research on lupus.
NIH Patient Recruitment for Neurological Sequelae Of Lupus Clinical Trials
Organizations| Lupus Alliance of America 3871 Harlem Road Buffalo, NY 14215 info@lupusalliance.org http://www.lupusalliance.org/ Tel: 866-415-8787 | Lupus Foundation of America 2000 L Street, N.W. Suite 710 Washington, DC 20036 info@lupus.org http://www.lupus.org/ Tel: 202-349-1155 800-558-0121 Fax: 202-349-1156 |
| American Autoimmune Related Diseases Association 22100 Gratiot Avenue Eastpointe East Detroit, MI 48201-2227 aarda@aarda.org http://www.aarda.org/ Tel: 586-776-3900 800-598-4668 Fax: 586-776-3903 | National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) National Institutes of Health, DHHS 31 Center Dr., Rm. 4C02 MSC 2350 Bethesda, MD 20892-2350 NIAMSinfo@mail.nih.gov http://www.niams.nih.gov/ Tel: 301-496-8190 877-22-NIAMS (226-4267) |
Prepared by:
Office of Communications and Public Liaison
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892
Credits Given To: NINDS and NIH
Epilepsy
Epilepsy
Please pray for these people with seizures that they may have better control over their seizures and find healing.
Michael
Steve
Michael
Steve
Epilepsy is a condition which causes seizures.
Epilepsy affects countless children and adults every day.
This is a very nice website which is free and gives you the ability to track seizures, and even print seizure logs and reports. Having used this for my son, I have found it extremely helpful in keeping track of his seizures, medication and how he is doing in his seizure management.
Child Sponsorship
Child Sponsorship
Child Sponsorship here in the United States
Consider sponsoring a child?
PLEASE SEE A LIST OF CHILDREN WAITING TO BE SPONSORED AT THE BOTTOM OF THIS PAGE.
There is a child right now who needs your help.
By sponsoring a child, you will help to pay for that child's medical care, surgery, medication, doctor's visit, or medical equipment, school supplies, clothing, food and toys for their development.
You will also help to take some of the burden off their parents who give so much of themselves.
These parents who worry so much about how to make ends meet and how to meet the needs of their little ones.
PLEASE SEE A LIST OF CHILDREN WAITING TO BE SPONSORED AT THE BOTTOM OF THIS PAGE.
There is a child right now who needs your help.
By sponsoring a child, you will help to pay for that child's medical care, surgery, medication, doctor's visit, or medical equipment, school supplies, clothing, food and toys for their development.
You will also help to take some of the burden off their parents who give so much of themselves.
These parents who worry so much about how to make ends meet and how to meet the needs of their little ones.
The Sponsored Child
Each child in our Child Sponsorship program lives within theUnited States
The families of these children have extra challenges in providing care their child for a variety of reasons.
These reasons can include unemployment, loss of medical insurance, and life changing illness.
Other reasons may include a child whose medical care is complex, or a life challenge or disability.
Even still, the parents of these children may face extensive bills due to medical care or adoption expense.
Caring for five special children of our own, we understand these daily challenges can sometimes be overwhelming.
The more children we are able to sponsor, the more we can help each of them.
Each child in our Child Sponsorship program lives within the
The families of these children have extra challenges in providing care their child for a variety of reasons.
These reasons can include unemployment, loss of medical insurance, and life changing illness.
Other reasons may include a child whose medical care is complex, or a life challenge or disability.
Even still, the parents of these children may face extensive bills due to medical care or adoption expense.
Caring for five special children of our own, we understand these daily challenges can sometimes be overwhelming.
The more children we are able to sponsor, the more we can help each of them.
PLEASE READ MORE!
When a Child is Welcomed as a Sponsored Child
Each child who is welcomed into our program as a Sponsored Child receives:
a Welcome letter and a Certificate signed by the Owner of Richardson Studios.
What Do I Receive as a SponsorA letter of gratitude signed by the owner of Richardson Studios and the knowledge that every time you send in your sponsor payment that the Lord is smiling at the love you are extending to a child in need.
Our Costs
Every dollar goes to support both the child and administrative costs of continuing our program.
Administrative costs include postage, promotion materials, the cost of this website, and salaries of our team.
The remaining funds go directly toward the sponsored children.
One Time Donation
One time donations in any amount are accepted ($5.00, $10.00, $20.00, $50.00, $100.00, OR MORE).
One time donations are acceptable through the donation button on our blog at www.richardsonstudios.blogspot.com to the right at the top of our posts.
Regular Sponsorships
Weekly is $10.00 ! or Monthly is are $20.00 !
Child Sponsorship is easy!
We have various children right here in theUnited States
Please consider becoming a regular child sponsor.
How To Sponsor a Child
1. Go to www.richardsonstudios.com (if you are not already at our website)
2. Choose whether you would like to be Regular Sponsor, or make a One Time Donation
3. If you choose to be a Regular Sponsor, choose whether you want to donate weekly or monthly.
4.Click on the Child Sponsorship page.
5. Choose which child you would like to sponsor.
6. Click on that child's donation button to sign up.
7. Your account will automatically be billed.
8. You can stop your sponsorship at anytime.
9. To see updates on your child's progress, go to your child's sponsorship section below.
There you will find pictures and information about how your child is doing.
How To Refer a Child Who Needs Sponsorship
If you know of a child you recommend for sponsorship, please email us at academyofthepossible@gmail.com for more information. Be sure to include your email or mailing address, so we can send you the information.
Or, write to us direct at:
Richardson Studios
Attn: Child Sponsorship Referral
6130 Camino Real #50, Riverside CA 92509
Is My Donation Tax Deductible
We cannot provide a tax deductible receipt at this time.
One of our goals as a company is to obtain non-profit status so that we can provide tax deductible receipts to our donors and sponsors.
This is a work in progress. Please check back with us.
Why Don't the Children Have Last Names
In order to protect the privacy of each child and their families, last names are omitted.
Who Are The Sponsored Children
Take a look at the children below.
Each child has unique needs.
Each child's needs will be updated as they change, and as we receive information on them.
Photos of the children are updated as we receive them.
THANK YOU FOR YOUR KINDNESS, LOVEAND GENEROSITY!
When a Child is Welcomed as a Sponsored Child
Each child who is welcomed into our program as a Sponsored Child receives:
a Welcome letter and a Certificate signed by the Owner of Richardson Studios.
What Do I Receive as a SponsorA letter of gratitude signed by the owner of Richardson Studios and the knowledge that every time you send in your sponsor payment that the Lord is smiling at the love you are extending to a child in need.
Our Costs
Every dollar goes to support both the child and administrative costs of continuing our program.
Administrative costs include postage, promotion materials, the cost of this website, and salaries of our team.
The remaining funds go directly toward the sponsored children.
One Time Donation
One time donations in any amount are accepted ($5.00, $10.00, $20.00, $50.00, $100.00, OR MORE).
One time donations are acceptable through the donation button on our blog at www.richardsonstudios.blogspot.com to the right at the top of our posts.
Regular Sponsorships
Weekly is $10.00 ! or Monthly is are $20.00 !
Child Sponsorship is easy!
We have various children right here in the
Please consider becoming a regular child sponsor.
How To Sponsor a Child
1. Go to www.richardsonstudios.com (if you are not already at our website)
2. Choose whether you would like to be Regular Sponsor, or make a One Time Donation
3. If you choose to be a Regular Sponsor, choose whether you want to donate weekly or monthly.
4.Click on the Child Sponsorship page.
5. Choose which child you would like to sponsor.
6. Click on that child's donation button to sign up.
7. Your account will automatically be billed.
8. You can stop your sponsorship at anytime.
9. To see updates on your child's progress, go to your child's sponsorship section below.
There you will find pictures and information about how your child is doing.
How To Refer a Child Who Needs Sponsorship
If you know of a child you recommend for sponsorship, please email us at academyofthepossible@gmail.com for more information. Be sure to include your email or mailing address, so we can send you the information.
Or, write to us direct at:
Richardson Studios
Attn: Child Sponsorship Referral
6130 Camino Real #50, Riverside CA 92509
Is My Donation Tax Deductible
We cannot provide a tax deductible receipt at this time.
One of our goals as a company is to obtain non-profit status so that we can provide tax deductible receipts to our donors and sponsors.
This is a work in progress. Please check back with us.
Why Don't the Children Have Last Names
In order to protect the privacy of each child and their families, last names are omitted.
Who Are The Sponsored Children
Take a look at the children below.
Each child has unique needs.
Each child's needs will be updated as they change, and as we receive information on them.
Photos of the children are updated as we receive them.
THANK YOU FOR YOUR KINDNESS, LOVE
Thank you to our Sponsors and Donors who make this possible!
Our Sponsored Children
Michael:
Who: Michael is a a delightful 13 year old boy who was adopted from Kazakhstan.
Likes: Michael enjoys video games, and wants to be a musician when he grows up.
Medical Needs: Michael has a variety of complex medical needs including Cerebral Palsy, Auditory Processing Disorder, Short Stature, Cognitive and Developmental Delays, Speech and Language Delays, Thrombocytopenia, Hemolytic Anemia, Evan's Syndrome (a rare autoimmune disorder of the blood), Lupus, Secondary Autism, Periventricular Leukomalacia, Hypoplasia of the Corpus Callosum, and Gastrointestinal Disorder.
Regular Medical Care: medication, lab work and medical tests, and evaluation with multiple specialists.
To Sponsor Michael Weekly Click Here:
Who: Michael is a a delightful 13 year old boy who was adopted from Kazakhstan.
Likes: Michael enjoys video games, and wants to be a musician when he grows up.
Medical Needs: Michael has a variety of complex medical needs including Cerebral Palsy, Auditory Processing Disorder, Short Stature, Cognitive and Developmental Delays, Speech and Language Delays, Thrombocytopenia, Hemolytic Anemia, Evan's Syndrome (a rare autoimmune disorder of the blood), Lupus, Secondary Autism, Periventricular Leukomalacia, Hypoplasia of the Corpus Callosum, and Gastrointestinal Disorder.
Regular Medical Care: medication, lab work and medical tests, and evaluation with multiple specialists.
To Sponsor Michael Weekly Click Here:
To Sponsor Michael Monthly Click Here:
To Unsubscribe from Sponsoring Michael Click Here:
Gabriela:
Who: Gabriela is a charming 11 year old girl who was born in the Ukraine and adopted from a disurpted adoption.
Likes: Gabriela loves animals and to draw. Gabriela wants to be an animal rescuer and artist when she grows up.
Medical Needs: Gabriela has Bipolar Disorder and ADHD.
Regular Medical Care: medication, and on-going follow up with a specialist.
Who: Gabriela is a charming 11 year old girl who was born in the Ukraine and adopted from a disurpted adoption.
Likes: Gabriela loves animals and to draw. Gabriela wants to be an animal rescuer and artist when she grows up.
Medical Needs: Gabriela has Bipolar Disorder and ADHD.
Regular Medical Care: medication, and on-going follow up with a specialist.
Joseph:
Who: Joseph is a wonderful 8 year old boy who was born in Estonia and adopted from a disrupted adoption. Joseph is a ham and loves to be the center of attention.
Likes: Joseph likes everything technical including games, music MP3 players, and computers. Joseph wants to work with computers when he grows up.
Medical Needs: Joseph has complex and challenging medical needs which may affect how long he lives and include FAS (Fetal Alcohol Syndrome), Pulmonary Hypertension, Transposition of the Major Vessels Repaired, upcoming open heart surgeries to repair his declining heart over the next 2-3 years, open heart surgery was done for a pacemaker, Cognitive Delays, Speech and Language Delays, Developmental Delays, Learning Disability, Microcephaly, Craniostenosis, and Short Stature. Joseph also wears glasses.
Regular Medical Care: very expensive and multiple medications, lab tests and procedures, mulltiple surgeries and therapies, and on-going follow up with multiple specialists.
Who: Joseph is a wonderful 8 year old boy who was born in Estonia and adopted from a disrupted adoption. Joseph is a ham and loves to be the center of attention.
Likes: Joseph likes everything technical including games, music MP3 players, and computers. Joseph wants to work with computers when he grows up.
Medical Needs: Joseph has complex and challenging medical needs which may affect how long he lives and include FAS (Fetal Alcohol Syndrome), Pulmonary Hypertension, Transposition of the Major Vessels Repaired, upcoming open heart surgeries to repair his declining heart over the next 2-3 years, open heart surgery was done for a pacemaker, Cognitive Delays, Speech and Language Delays, Developmental Delays, Learning Disability, Microcephaly, Craniostenosis, and Short Stature. Joseph also wears glasses.
Regular Medical Care: very expensive and multiple medications, lab tests and procedures, mulltiple surgeries and therapies, and on-going follow up with multiple specialists.
Joshua:
Who: Joshua is a loving 6 year old boy who was born in Estonia and adopted from a disrupted adoption. Joshua loves to be silly.
Likes: Joshua enjoys dinosaurs, cars and building things. Joshua wants to be an engineer when he grows up.
Medical Needs: Joshua has Fetal Alcohol Effects, and Speech and Language Delays.
Regular Medical Care: speech therapy, and follow up with a specialist.
Who: Joshua is a loving 6 year old boy who was born in Estonia and adopted from a disrupted adoption. Joshua loves to be silly.
Likes: Joshua enjoys dinosaurs, cars and building things. Joshua wants to be an engineer when he grows up.
Medical Needs: Joshua has Fetal Alcohol Effects, and Speech and Language Delays.
Regular Medical Care: speech therapy, and follow up with a specialist.
Shawna:
Who: Shawna is a delightful 3 year old girl who was adopted here in the USA. Shawna is a warm and friendly girl.
Likes: Shawna loves real horses and playing dollies and playing animals. Shawna wants to be a blue (as in the color) doctor who helps people when she grows up.
Medical Needs: Overall Shawna is a healthy girl.
Regular Medical Care: follow up with a pediatrician.
Who: Shawna is a delightful 3 year old girl who was adopted here in the USA. Shawna is a warm and friendly girl.
Likes: Shawna loves real horses and playing dollies and playing animals. Shawna wants to be a blue (as in the color) doctor who helps people when she grows up.
Medical Needs: Overall Shawna is a healthy girl.
Regular Medical Care: follow up with a pediatrician.
Thank you again for your generosity, and for making a difference in the life of a child.
We pray the Lord remembers your kind generosity.
We pray the Lord remembers your kind generosity.
LOVE IS....
LOVE IS....
LOVE IS A CHOICE, NOT ALWAYS A FEELING.
LOVE IS HUGGING YOUR CHILD WHEN YOU ARE REALLY MAD AT THEM.
LOVE IS NOT ALWAYS EASY.
LOVE IS SAYING YES WHEN IT IS HARD FOR YOU, AND YOU WANT TO SAY NO BECAUSE NO WOULD BE EASIER.
LOVE IS LEARNING HOW TO BE PATIENT WHEN YOU'D RATHER NOT BE.
LOVE IS LEARNING TO SPEAK CALMLY TO YOUR CHILDREN, WHEN INSIDE YOU'D LIKE TO SCREAM.
LOVE IS SAYING NO BECAUSE IT IS BETTER FOR THEM, WHEN IT WOULD BE EASIER TO SAY YES.
LOVE IS KIND WHEN YOU'D RATHER STICK OUT YOUR TONGUE.
LOVE IS LEARNING HOW TO MEET THE NEEDS OF ALL YOUR CHILDREN, NOT JUST ONE OF THEM.
LOVE IS LEARNING HOW TO BE MORE LIKE CHRIST.
AMEN.
Copyright 2012 Jennifer Richardson
Stories of our Special Children
Stories
These are the stories of our special children. Each of them unique and special. Each of them persevering in their own struggles. Each of them celebrating in their own triumphs.
If you have a story to share, please contact us.
We will be happy to review your story. If it is accepted, we will publish your story on our website.
We request a donation to help cover the administrative costs of the site.
We look forward to hearing from you.
Shawna's Story
Shawna's Story
Thank you Shawna for the beautiful child you are. Your simple presence inspires us to make a difference.
For our youngest Shawna - who brings joy to our every breath. Thank you Shawna for the priviledge of being your parents. Adopting you was the best decision we ever made.
Shawna was born in the United States and adopted independently through a birthmom who had no means to take care of her. We have had her since birth.
Every day Shawna blesses us as she grows and learns. We are delighted to say she is healthy and developmentally on target with a spirit full of energy and joy.
Praise the Lord.
Michael's Story
Michael's Story
Thank you Michael for inspiring us to make a difference every day in the lives of other children.
For our oldest Michael - who brings warmth and love to our every moment. Thank you Michael for the priviledge of being your parents. Adopting you changed my life for the better. You were our first. I love you SO much !
This picture of Michael is a week before he got really sick. Forty-four (44) different diseases later, the doctors still don't know entirely why Michael is so sick; and, he has every single one including but not limited to ectodermal dysplasia, systemic lupus, evan's syndrome, growth hormone deficiency, cerebral palsy, and many many others.
This picture of Michael is a week before he got really sick. Forty-four (44) different diseases later, the doctors still don't know entirely why Michael is so sick; and, he has every single one including but not limited to ectodermal dysplasia, systemic lupus, evan's syndrome, growth hormone deficiency, cerebral palsy, and many many others.
Michael is a true testimony to the endurance of the human spirit and the reason why adoption is so important.
Joseph's Story
Joseph's Story
Thank you Joseph for inspiring us to make a difference in the lives of others every day.
For our son Joseph Noah - who brings life, hugs and love, and complete acceptance to everyone. Joseph you make us smile with your simple heart every moment. Thank you Joseph for the priviledge of being your parents. Adopting you has taught us to cherish every single second the Lord has given us.
Joseph was born in Estonia and raised in an orphanage until 6 years old. At 6 years old Joseph was adopted by a US couple in August of 2006 who determined very quickly that Joseph needed a great deal more than they were able to provide, especially already having a special needs child of their own, and disrupted their adoption. Scott and I were blessed to adopt Joseph from this very warm and generous couple. Joseph became part of our family in March of 2008.
Joseph was born with alcohol exposure. After he came to the US, Joseph was diagnosed with Severe Fetal Alcohol Syndrome, Microcephaly, Craniostenosis, Transposition of the Major Vessels, Cognitive Delay, Speech and Language Delays, and Developmental Delay, along with other smaller birth defects, Asthma and Pulmonary Hypertension. He also has short stature and a Growth Hormone Deficiency. Having survived four open heart surgeries and a complicated cardiac history, Joseph has a tenacious spirit.
Joseph is a delightful child who is accepting of everyone.
Joshua's Story
Joshua's Story
Thank you Joshua for inspiring us in your quiet way to make a difference.
And For our precious son Joshua - who brings peace and a simple smile and a reminder that each day will take care of itself. Thank you Joshua for the priviledge of being your parents. Adopting you has shown us to enjoy the simple things in life like family and togetherness.
Joshua was born in Estonia born with alcohol exposure, probable Fetal Alcohol Effects, and lived in very unstable beginnings the first two years of his life. Joshua is the biological brother to Joseph. Both Joshua and Joseph have been in the United States since August of 2007 by a couple who wanted so much to make a positive difference in these children's lives. Unable continue with the adoption, they made the very difficult decision to disrupt their adoption; God lead us along a very long and difficult path in order to have us in the right place at the right time to adopt Joshua and Joseph, who have similar stories. Joshua has Probable Fetal Alcohol Effects as well as Speech and Language Delays.
Joshua has a sweet spirit and quiet way about him. His simple desire is to be recognized, loved and wanted.
GabrielaEileen's Story
Gabriela's Story
Thank you Gabriela for inspiring us to make a difference in the lives of other kids just like you !
For our daughter GabrielaEileen - who brings spontaneity, laughter and challenge to us every day. Thank you Gabi for the priviledge of being your parents. Adopting you has taught us the value of perseverance and patience. We love you, and you inspire us to never give up!
Gabriela was born in the Ukraine, raised in an orphanage until 3 and 1/2 years old when she was adopted by a US couple. Gabriela lived with her first adoptive family for 2 and 1/2 years when they decided they were unable to meet her needs. They disrupted their adoption of her when she turned six years old. We were blessed to adopt Gabriela and become her forever family, and she has been with us ever since.
Gabriela was misdiagnosed as having Reactive Attachment Disorder, and after three years in our family was correctly diagnosed as having Early Onset Bipolar Disorder and ADHD. Gabriela has been on medication for a year now and has made tremendous imrovement. She is a delightful child.
Gabriela was honored with acceptance into Camp Opehay this year. Camp Opehay is a camp for children with Bipolar Disorder, and is the only one of its kind nationally.
A Sibling Story
A Sibling Story
This story is true. We had the fortune of knowing a family of two boys, ages 7 and 8 years old. These boys had very little. Every night when they went to sleep, they curled up on the floor. This is because they had no beds to sleep in. Richardson Studios was able to provide a bunkbed, so each of the boys would have their own bed to sleep in. Richardson Studios also provided two mattresses, plastic vinyl mattress cover and 3 sets of sheets for these boys. We are so happy they no longer have to sleep on the floor.
Academy of the Possible Private Christian School
Academy of the Possible
A school for special kids with special needs.
Where The Impossible Becomes POSSIBLE !
More Coming Soon !
We are in the process of forming a new school for special needs children, applying for non-profit status, and raising money for this cause.
Academy of the Possible is a division of Richardson Studios.
Where The Impossible Becomes POSSIBLE !
More Coming Soon !
We are in the process of forming a new school for special needs children, applying for non-profit status, and raising money for this cause.
Academy of the Possible is a division of Richardson Studios.
Academy of the Possible is our vision for a school based on our Roman Catholic Christian faith.
Academy of the Possible is founded by lay people.
Academy of the Possible is for all special needs children from preschool through 12th grade until graduated with onsite services for various needs such as :
occupational therapy, physical therapy,
speech and language therapy, and
Christian psychological services and counseling,
individualized education programs for each child,
vocational skills, social skills,
play therapy, art therapy, and
music therapy.
Currently, Academy of the Possible has open registration for 1st through 12 Grades.
Curriculum is individualized and tailored to each student dependent upon the students strengths and needs and the parents goals for their children.
If you have any questions, please contact us at
For more information you can also visit 'Our Vision' page.
If you would like to donate financially to Academy of the Possible, please click on the button below:
You may also visit our donations page for individual donors and sponsors, and corporate donors and sponsors pages.
If you would like to donate equipment, land, property, educational supplies, or other supplies, please complete a contact us form, email us, or simply call. We would be happy to discuss this further with you.
We will also update this page as we move along in the process.
Store
Store
Come visit our online store !
We have many new items coming !
Every dollar goes to support the children !
Please come and check us out !
See our home page for featured items for sale including:
Every dollar goes to support the children !
Please come and check us out !
See our home page for featured items for sale including:
Custom Greeting Cards with Artwork by Jennifer Richardson
Custom Calenders 2001 with Artwork by Jennifer Richardson
Handknitted Scarves
A book Adopting Baby Shawna
Homeschooling Curriculum Worksheets
More to come. Check back soon.
Make this your home page.
Waiting Children
Waiting Children
Thank you for your love, kindness, and generosity!
Adoption is such a special and personal choice.
Adoption is such a special and personal choice.
For parents considering adoption, we want to encourage you.
Having adopted five children of our own, we value each and every one of them.
Please consider adoption and change the life of a child.
Thank you,
Jennifer Richardson
Please consider adoption and change the life of a child.
Thank you,
Jennifer Richardson
Children We Have Helped:
A newborn foster baby: this baby is in new foster care and had nothing. Richardson Studios was able to provide an infant swing, bassinet, diaper bag, some baby clothes, blanket, and diapers. Name withheld due to privacy laws which protect this baby.
A newborn foster baby: this baby is in new foster care and had nothing. Richardson Studios was able to provide an infant swing, bassinet, diaper bag, some baby clothes, blanket, and diapers. Name withheld due to privacy laws which protect this baby.
If you are unable to adopt at this time, please consider one of our child sponsorships.
Donations
Donations
Every DOLLAR makes the difference in the life of a child !
Please donate generously !
Please consider a monthly donation by clicking on our subscribe button below. You can donate for 3 months, 6 months, or 12 months.
You may unsubscribe at any time by clicking below.
We easily spend five dollars on lunch at the fast food place down the street or that special cup of coffee to get us going in the morning.
Working together, your donation will help a child.
Working together, your donation will help a child.
Faith, Mission & Vision
Faith, Mission & Vision
OUR FAITH strengthens us and sustains us.
OUR MISSION keeps us focused.
OUR VISION drives us.
OUR MISSION keeps us focused.
OUR VISION drives us.
God so loved the world that He gave His only begotten Son that we might have everlasting life.
About Us
About Us
We have struggled with infertility for since 1998, for fourteen years. We found peace through adoption. The Lord truly was calling us.
We are the Richardsons; we are a family of seven. We have five children all through adoption ages 15, 13, 10, 8, and 6. Our children (Michael, Gabriela, Joseph, Joshua, and Shawna) are from Kazakhstan, Ukraine, Estonia for two, and the United States.
Scott and Jennifer -
May God bless our journey as we seek to glorify Him.
May God bless our journey as we seek to glorify Him.
Christ is THE Reason
The Reason
His name is Jesus Christ, and he has changed our lives.
We will never be the same !
To God Be The Glory !
To God Be The Glory !
Praise You Jesus for all you have done and continue to do for us !
He can change your life too !
Ask Him into your heart today, give your whole life to Him.
He can change your life too !
Ask Him into your heart today, give your whole life to Him.
Then, find a church to support you in your new walk with Christ.
Our Services
Our Services
Our Services:
Richardson Studios provides resources - medical and homeschooling, education, products, and services for children and their parents around the globe, most particularly those children who are orphaned, abandoned, waiting to be adopted and special needs.
Thank You for Helping Us Help a Child because Every Child Matters.
Thank you for taking the time to visit us.
Scott and Jennifer Richardson
Richardson Studios provides resources - medical and homeschooling, education, products, and services for children and their parents around the globe, most particularly those children who are orphaned, abandoned, waiting to be adopted and special needs.
Thank You for Helping Us Help a Child because Every Child Matters.
Thank you for taking the time to visit us.
Scott and Jennifer Richardson
Dedication - Are You Thankful?
Dedication
This site is dedicated to each of my children - Michael David, GabrielaEileen KelleyLuba, Joseph Noah, Joshua John, and Shawna Rose, for each of your special ways, and to every child who has touched my heart in more ways than they will ever know. This site is dedicated also to every child around the world who is alone, has been orphaned, suffers from neglect, abandonment, abuse, loss, illness, and challenges every day.
ARE YOU THANKFUL?
Are You Thankful?
Are you still complaining?
HELP US HELP A CHILD ! PLEASE GIVE !
To make a donation, please see the donations button at the bottom of our home page.
Observe around you and be thankful for all that you have in this Transitory Lifetime...We are fortunate, we have much more than we need to be content.
Let's try not to feed this endless cycle of consumerism and Immorality in which this "modern and advanced" society forgets and ignores the other 2/3rds of our brothers and sisters.
LET US COMPLAIN LESS AND GIVE MORE!!
Donna, who is such a blessing to us and many families, sent us this email called ...Are you Thankful?. "My son Austin sent me an email that was so touching and helps to putin perspective life. ...I had to put it on my blog.... It is touching...feel free to pass it along to others during this holiday season. Donna"
When we asked her if we could publish this, she said
"Absolutely! It is why we stay involved in adoptions and in humanitarian work long after our children are home. Donna"
PLEASE CONSIDER MAKING A DONATION - IT WILL MAKE A DIFFERENCE ! IT COULD LITERALLY SAVE A LIFE !
Jennifer Richardson
http://shop.richardsonstudios.com
Used by permission.
Used by permission.
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