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Tuesday, August 11, 2009

103 Degrees

Last Thursday, Shawna came down with a fever of 103 degrees or nearly (102.9 to be exact). Within 24 hours the fever broke. We missed the bible study that evening but are so glad our princess is well. No other symptoms and doing fine now.

Joseph's medication for his pulmonary hypertension has been increased. I can't tell if it is helping, but please prayer for him as he gets tired and blue in his lips with activity on and off.
The doctors feel at this point that he is doing well enough that oxygen would not be beneficial, so we will keep an eye on him. He will have a consult with a pulmonary specialist, and I will ask for a device to monitor his oxygen saturation (called O2 sats) at home. Please pray the doctor will prescribe it so insurance will pay for it.

Michael is not doing so good. He has headaches sometimes even with confusion where he seems quite not himself most days. The medication the neurologist gave him does not seem to touch them at all. He will have another followup with neurology. He also is feeling tired, chest pain, and heart palpitations. We are trying to get a referral to cardiology and are waiting for appointments for specialist followups to address his thyroid (endocrinology), growth (endocrinology), joint pain and popping and cracking (rheumatology), and trouble walking (orthopedics). It is moments like this when I wish Dr. House was a real physician. The more labs they do the more things come back abnormal. Michael's albumin is low (2.3 where at least 3.5 to 5.0 is normal). Albumin is the protein part of the blood and is extremely important. It means he is losing protein somewhere either his liver or his kidney. In either case, it is not good and could explain some of the problems he is having. I worry though because the doctors just seem to take their good ol' time. I probably could do better doctoring myself. Pray for us. Michael is a trooper though because he still helps around the house where he can. Very often, Michael sits down with Joseph to help him learn his letters and practices beginning reading with him. Michael is patient with each letter as he says "A makes the a sound" and waits for Joseph to point to the A and repeat before going on to each next letter of the alphabet.

Gabriela is doing very well, continues to be very stable, and is growing into quite a tall young lady. She is only 11 but already 5 feet tall and wears my size shoes. She is quite the help around the house.

Josh is doing well in school and is reading beginner reading books including the Dick and Jane series very well on his own. His laugh is fun and quite contagious when he giggles.

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I Will Be With You Wherever You Go

I WILL BE WITH YOU WHEREVER YOU GO !
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