Michael was feeling pretty blah and extra tired today. He is having pain in his knees, shoulders, chest, back, neck. He is struggling with eating and drinking. He has a hard time most of the time anyway with feeling thirsty until he is at the extremes of thirst (not your average issue at all), and his medicine makes him feel full all the time. It was hard to get him to have anything until late tonight. He also said his hair was driving him crazy and was so adamant that he didn't want it anymore. He kept asking and asking and asking to please just shave his head. His skin seems to be real sensitive now. Well, his platelets are too low for that, so we trimmed it short with a scissor cut (mom's not so great job), until his platelets are high enough to have it done by a barbor. He loves it ! It is kind of choppy, but he really likes it. So, I guess I won't worry since he isn't. Michael got this beautiful white bear holding a heart at CHOC when he was in the hospital from a little mini carnival they had for the kids. He gave it to me and said here mom this is for you and don't share it. Oh, my heart melted. Joseph (Tristan) and Joshua (Wyatt) were also excited to get toys, cars and trucks to play with. Joseph wanted to hug Michael all the time bless his soul. He was really really worried about Michael.
Jennifer
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