Seizures

Michael was in the hospital for the umpteenth time (I think this is the 14th time) the first week of this month for seizures this time. He was having multiple seizures, lasting up to 15 minutes, several with loss of awareness, and last I counted I think he was having 7 different types. While the doctors did several tests, we don't have any new answers. We were very unhappy with the care from the neurology group at CHOC and would not recommend them to anyone. We were extremely disappointed that Michael's regular neurologist did not even come to see him. We found the neurologists on staff unprofessional to say the least after accusing Michael of making them up of all things! Even Michael's rheumatologist did not agree with that. Michael had 22 seizures within a 7 day (1 week) period. The types and number of seizures he has and has had are far too complex for any child to make up. We will be changing neurologists, to say the least. Fortunately, we have caught some on video clips; hopefully that will help the new neurologist.

Jennifer Richardson
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